Hello, I am Peter A Edwards and this site is about a Gluten Free Life, which is not through choice but due to health reasons as I have Celiac Disease. From the time I was born on the 16th May 1975, my life has revolved around hospital; my early childhood was all surgery related.
From 1975 to 1991 apart from the odd infection, was spent having major surgery. Things settled down for a time from around 1992 to around 2002. There would have been the occasional chest infection or cold, which would have been a struggle to get over.
I always found that gaining weight was a real struggle, and everything I did eat made me feel ill. So most of the time there would have been nausea and a sore stomach. Therefore eating was not a pleasure, and every meal felt like you had just done a few rounds in a boxing ring.
Before I was ever diagnosed in 2012, my health started to suffer by have more and more frequent admissions into hospital. If it had not been for my health suffering, there is a possibility that it would never have been discovered that this illness was making me ill in the first place.
Back in 2006, my problems with illness really started. At least once or twice a year at the most, would I have been admitted to hospital with an infection before this. But gradually over the next 5 years the admissions became more common and more frequent.
There became a point that I thought why was I getting so ill, and nothing was being checked by my hospital consultants. Everything they treated was related to my chest and the recurrent infections, which where become more and more common.
Back in 2010, after having taken ill a few things started to not seem right. I took ill and was rushed into hospital, where things got worse with me ending up in Intensive Care. It took almost six months to recover from this chest infection.
Within a few weeks, again another hospital admission. This time though it was fortunate my health improved quick enough to avoid being admitted to Intensive Care. Over the period of weeks, I got re-admitted to hospital. Then in the Summer of 2011 again another infection to hold.
Enough was enough, I started then to question what was causing the frequent admissions. During a visit from Consultant, I queried if there was the possibility that I could have Celiac Disease. Can you explain your symptoms to me, so when the symptoms where explained she asked if I could give a blood and stool sample for testing.
At a routine check-up a few weeks later to allow me to regain my strength, a Consultant asked me since when where you diagnosed with Celiac Disease. I told him it must have been in July 2011, he looked back on the admission notes before discharge and confirmed what I had already queried.
To confirm everything was positive, a Bronchoscopy was requested. Though again I took ill within six weeks, so the test could not be done at that stage. Over the next few months I had repeated admissions again to hospital. Again I became very ill, and got admitted to Intensive Care after speaking with the Consultant. This time I asked if it was possible that there was an underlying illness called Bronchiectasis. He looked shocked as I asked about it, also because a patient never wants an Intensive Care admission. It could be was his reply, as we where discussing you case earlier. But as your going to Intensive Care, we can not test for it until you are well enough.
When I became well enough for testing, it was at an appointment a Consultant said do you know what you have, I took one look at the scan results and informed him that it was Bronchiectasis.
A few weeks later when I was well enough to be tested for Celiac Disease, the Surgeon asked what where the Blood Results. When I gave him the result he told me that it was more likely that I did have it and if it was alright to perform the Bronchoscopy.
Before the test I informed the Surgeon that he would not find what he thought he would find. Afterwards, he informed me that if he had known before hand the nature of my medical problems, that he would not have performed the test procedure. Given the fact that my results where so high he was going to treat me as having Celiac.
Founder of Gluten Free Life